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A Rare Lysosomal Storage Disease
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Archive for the ‘Social Services’ Category

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19 Mar 2012

20th Annual Family & Medical Conference

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Written by , Posted in Blog, Events, Featured Blog, Fundraising, Rare Disease, Research, Social Services, Therapies, Treatments | Leave a comment
20th Annual Family & Medical Conference

This year is the National Niemann-Pick Disease Foundation’s 20th year of providing services to families affected by Niemann-Pick Disease, raising awareness, and the crucial part of funding for research. This special occasion will be held in Nashville, Tennessee on August 16-19th! More details will develop here in […]

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13 Feb 2010

Social Security Adds 38 New Medical Conditions that Qualify for Disability

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Written by , Posted in Blog, News, Social Services | Leave a comment

Social Security adds 38 new medical conditions that qualify for disability help.  The new conditions range from early-onset Alzheimer’s disease to rare diseases that primarily affect children which includes Niemann-Pick Type C! Personally this seems like a relief for so many families. One of the goals of […]

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